UH Rainbow Primary Ciliary Dyskinesia Center Provides Comprehensive Services for Rare Lung Disorder
January 29, 2020
UH Pediatric Clinical Update | February 2020
The UH Rainbow Babies & Children’s Hospital Primary Ciliary Dyskinesia (PCD) Center offers a collaborative and multidisciplinary team to manage patients with the rare lung disorder –primary ciliary dyskinesia - from infancy to adulthood. Pediatric and adult pulmonologist, Olivia Giddings MD, PhD, is the director of the PCD Center.
If you have a patient with one or two of the following symptoms, consider referring them to the UH Rainbow PCD Center for further evaluation:
• Year-round, daily cough since early infancy
• Year-round, daily nasal congestion since the first year of life
• History of newborn respiratory distress and oxygen requirement despite a full-term gestation
• Heterotaxy and/or organ laterality defect
Primary Ciliary Dyskinesia is a genetically heterogeneous, rare lung disease causing chronic oto-sino-pulmonary disease and bronchiectasis. Difficult to diagnose, the first step is recognizing the clinical features followed by referral to highly experienced PCD centers skilled at interpreting the diagnostic tests. University Hospitals Rainbow Babies and Children’s Hospital is the first Primary Ciliary Dyskinesia (PCD) Center in the U.S. to be fully accredited by the Primary Ciliary Dyskinesia Foundation – and the only approved center in Ohio.
To refer a patient to the PCD center call 877-747-8566.