Comprehensive, Compassionate Care for Children with Cystic Fibrosis
Most cystic fibrosis (CF) patients receive their diagnosis when they are babies or children. In fact, two thirds of cystic fibrosis patients are diagnosed by one year of age. At University Hospitals Rainbow Babies & Children’s Hospital, our nationally recognized, board-certified physicians and support team are dedicated to helping children with cystic fibrosis stay as healthy and happy as possible.
Call to Schedule an Appointment Today
To schedule an appointment for your child with a cystic fibrosis specialist, please call 216-844-1750 or schedule your appointment online.
Pediatric Inpatient Care
At UH Rainbow Babies & Children’s Hospital, when hospitalization is required for a child with cystic fibrosis, the child is admitted to a hospital unit dedicated to the care of pediatric pulmonary patients. All pediatric patients are placed in private rooms where the infection control precautions recommended by the Cystic Fibrosis Foundation are strictly followed.
University Hospitals Cleveland Medical Center, which includes UH Rainbow Babies & Children’s Hospital, has state-of-the-art facilities to provide the necessary support for the inpatient care of pediatric cystic fibrosis patients. Inpatient services include:
- Full laboratory services, including microbiology, biochemistry, hematology and immunology
- Radiology services, including bronchial artery embolization and difficult PICC line placement
- Pulmonary function testing
- A specialized nasal laboratory for measurements of nasal potential difference and nasal epithelial cell acquisition, exhaled nitric oxide measurements and multiple breath washout
- Endoscopy facilities offering both bronchoscopy and GI endoscopy
- Clinical psychology
- Child life services therapy
- Art and music therapy
- Facility dogs
- Exercise equipment
- Rooftop garden
- Playroom
- OT/PT
- Specialty pharmacy services
Pediatric Outpatient Care
We provide our pediatric cystic fibrosis patients a comprehensive range of outpatient services that includes:
- Laboratory services
- Radiology
- Pulmonary function tests (PFTs)
- Genetic evaluation
- Nutrition evaluation
- Sweat testing
- Counseling and support groups
- Research
- Specialty pharmacy services
- Pulmonary rehabilitation services
Our Multidisciplinary Approach
We take pride in our comprehensive, multidisciplinary approach, and have added a broad range of specialists to our CF care team that bring a vast depth of expertise to our pediatric patients, all provided under one roof. Our multidisciplinary team includes experts in:
- Nursing
- Social work
- Nutrition
- Respiratory therapy
- Genetics
- Research
- Pediatric pulmonology
- Pediatric endocrinology
- Pediatric gastroenterology
- Pediatric psychology
- Pediatric pharmacy
In addition to our primary CF team, we have access to a consulting staff of more than 40 pediatric and adult specialists who are knowledgeable, experienced and readily available for our cystic fibrosis patients. These care providers include:
- Surgeons
- Transplant surgeons
- Obstetricians/gynecologists
- ENT specialists
- Rheumatologists
- Allergists/immunologists
- Critical care specialists
- Pediatric psychiatrists and psychologists
- Hospice and palliative care medicine
- Child life therapy
- Pediatric PT, OT and other rehab therapies
Make an Appointment
To schedule an appointment with one of our cystic fibrosis specialists, please call 216-844-1750.
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