Hemostasis & Thrombosis Center Offers Comprehensive Care for Children and Adults
The University Hospitals Rainbow Babies & Children’s Hemostasis & Thrombosis Center is a lifespan center, where pediatric patients are seen at the Angie Fowler Adolescent & Young Adult Cancer Institute and adult patients are seen at University Hospitals Seidman Cancer Center. Our program specializes in multidisciplinary care for children with congenital thrombotic (blood clotting) and bleeding disorders. These include von Willebrand disease, hemophilia and other rare congenital conditions that increase the risk of bleeding or blood clots. The center also provides multidisciplinary hemostasis care to adult patients with congenital bleeding disorders.
Contact Us
If you have questions or want to learn more, call the UH Rainbow Hemostasis & Thrombosis Center at 216-844-4888.
Our Center
The Maternal and Child Health Bureau (MCHB) recognizes the UH Rainbow Hemostasis & Thrombosis Center as a regional comprehensive treatment center. Our center emphasizes prevention of long-term complications from bleeding and clotting disorders and promotes quality of life for the patients and families affected by these conditions.
Comprehensive Services
As one of only a few federally funded centers of its kind in Ohio, the UH Rainbow Hemostasis & Thrombosis Center delivers a full range of comprehensive services, including:
- Comprehensive diagnostic testing and evaluation
- Genetic counseling
- Medical supervision
- Coordination of care with specialists in ear, nose and throat, orthopedics, obstetrics and gynecology and other specialty areas
- Physical therapy, including a full-time dedicated physical therapist
- Point-of-care testing, including musculoskeletal ultrasound
- Self-infusion training and 24/7 home infusion therapy support
- Psychosocial counseling
- Patient and family education
- Support from child life specialists
- Transition to adult care
Multidisciplinary Approach to Treatment of Coagulation Disorders
Working with specialists in orthopedics, gynecology, cardiology, dentistry and other areas, our multidisciplinary team members use extensive knowledge and experience to deliver high-quality, compassionate care. We emphasize preventive medical care, maintaining preparedness for emergency situations and quality of life. Our multidisciplinary team consists of:
- Child life specialists
- Data managers
- Hemophilia nurse specialists
- Pediatric and adult providers (hematologists and advanced practice providers)
- Physical therapists
- Social worker
Education and Outreach Clinics Provide Comprehensive Services
The UH Rainbow Hemostasis & Thrombosis Center provides many important educational services for patients and families. Our specialists offer self-infusion training and 24/7 home infusion care management, including nursing services and 24/7 physician coverage. In addition, we provide specialty services such as:
- School and home visits
- Specialized educational programs
- Outreach clinics that serve Amish and Mennonite families
Transition to Adult Care
The UH Rainbow Hemostasis & Thrombosis Center provides patients and families with the resources they need to help young adults transition from pediatric to adult care providers. We carefully plan the process with patients to help ensure that their care is uninterrupted during their smooth and seamless transition.
Conditions We Treat
- Children
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- Congenital bleeding disorders
- Glanzman thrombasthenia
- Hemophilia A (factor VIII deficiency)
- Hemophilia B (factor IX deficiency)
- Other factor deficiencies (V, VII, X, XI, XIII)
- Platelet function disorder
- Von Willebrand disease
- Other rare bleeding disorders
- Clotting disorders
- Antithrombin deficiency
- Factor V Leiden
- Prothrombin gene mutation
- Protein C deficiency
- Protein S deficiency
- Other rare clotting disorders
- Congenital bleeding disorders
- Adult
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- Congenital bleeding disorders
- Glanzman thrombasthenia
- Hemophilia A (factor VIII deficiency)
- Hemophilia B (factor IX deficiency)
- Other factor deficiencies (V, VII, X, XI, XIII)
- Platelet function disorder
- Von Willebrand disease
- Other rare bleeding disorders
- Congenital bleeding disorders
Clinical Research
The UH Rainbow Hemostasis & Thrombosis Center team is on the leading edge of research and clinical trials for pediatric bleeding and clotting disorders. Our team has a rich history of scientific discovery and clinical achievements aimed at improving care and quality of life for children and adults with blood disorders.
Help Find a Cure Through Supporting Hemophilia Research
When Dominic was born, he was diagnosed with hemophilia, a bleeding disorder. Now, 13-year-old Dominic and his family want to help others with this condition – by working to raise money for research to cure hemophilia and other blood disorders.
For Referring Physicians
When referring to University Hospitals Rainbow Babies & Children’s Hospital’s Hemostasis and Thrombosis Center, you can expect coordinated care of complex bleeding and clotting disorders. You gain access to specialized diagnostic testing, evidence-based management and a multidisciplinary team with advanced coagulation expertise.
We welcome referrals for patients with known or suspected hemophilia, von Willebrand disease, platelet function disorders, rare bleeding disorders, or thrombophilia (pediatric patients only).
How to Refer
Pediatric patients: Call 216-844-3345
Adult patients (bleeding disorders only): Call 216-844-4888