2026 International Fibromuscular Dysplasia (FMD) Think Tank and Symposium

Join a panel of international experts for a review of global research initiatives and the latest in clinical approaches to the management of multifocal fibromuscular dysplasia (FMD) and related entities of coronary and cervical artery dissection. Working groups will meet and report on their progress in revisiting the FMD phenotype, defining FMD-related research priorities, and incorporating patient priorities into international collaborations. Registration has closed, email Kourtney.Daugherty@UHhospitals.org with questions. 

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Agenda

Thursday, July 23rd

8:30 - 9:30 am | Registration, Breakfast, Networking

9:30 - 9:55 am
And So We Meet Again! Introductions, History of International FMD Collaboration
Heather Gornik, MD

Welcome to University Hospitals Harrington Heart & Vascular Institute
Daniel Simon, MD

Session I: Fundamentals, Progress, Present State | Jeffrey Olin, DO, Moderator

Each talk - 12 minutes with 3 minutes for discussion unless noted.

9:55 - 10:00 am
Brief Case Presentation
Olivia Noall, MD

10:00 - 10:15 am
Revisiting the 2019 International Consensus
Alexandre Persu, MD, PhD

10:15 - 10:30 am
North American Registry for FMD: Structure, Accomplishments, Future Directions
James Froehlich, MD and Rachel Krallman

10:30 - 10:45 am
The European/International FMD Initiative
Alexandre Persu, MD, PhD and Maria Stoenoiu, MD, PhD

10:45 - 11:00 am
Structure and Progress of the ARCADIA-POL Registry
Andrzej Januszewicz, MD and Szymon Moryn, MD

11:00 - 11:05 am
My Top 5 Pearls of Wisdom for Starting a New FMD Clinical/Registry Center
Esther SH Kim, MD, MPH

11:05 - 11:20 am
An Abbreviated History, Present, and Future of the FMD Society of America (FMDSA)
Pamela Mace, RN

11:20 - 11:35 am
The Case for Revisiting the Phenotype: Is it Necessary to See the String of Beads to Diagnose FMD?
Jeffrey Olin, DO

11:35 - 11:45 am | Additional Discussion

11:45 am - 1:00 pm | Participant Photo and Lunch

Session 2: Clinical Considerations I - Renal | Esther SH Kim, MD, MPH, Moderator

Each talk - 12 minutes with 3 minutes for discussion unless noted.

1:00 - 1:15 pm
Epidemiology of FMD: Zebra or Horse? What Does the Literature Tell Us? How Can We Get at “Prevalence"?
Aaron Aday, MD

1:15 - 1:30 pm
Longitudinal Follow-Up of the French ARCADIA Cohort
Laurence Amar, MD

1:30 - 1:45 pm
Link Between Hypertensive Disorders of Pregnancy and FMD: How Could This Be Further Explored?
Matthew Corriere, MD

1:45 - 2:00 pm
Implementing the International Consensus Renal FMD/Revascularization Protocol in the Cath Lab: Practicalities and Cases
Mehdi Shishehbor, DO, MPH, PhD

2:00 - 2:15 pm
Renal and Visceral Aneurysm Management: Current Guidelines, FMD-Specific Data, Case Review
W. Michael Park, MD

2:15 - 2:20 pm
My Top 5 Pearls of Wisdom for Assessing and Treating Renal FMD in the Cath Lab
Tarek Hammad, MD

Rapid Research Recap Presentations 
Each talk - 7 minutes with + 3 minutes discussion.

2:20 - 2:30 pm
Renal Duplex for FMD: Data from Emory and University Hospitals
Bryan Wells, MD and Sally El Sammak, MD

2:30 - 2:40 pm
Renal Duplex for FMD: Data from Cleveland Clinic 
Natalia Fendrikova-Mahlay, MD

2:40 - 2:50 pm
Novel Duplex Markers for Assessing Renal FMD (e.g., Infrarenal Blood Flow)
Magdalena Januszewicz, MD

2:50 - 3:00 pm
Renal Stenting vs. Angioplasty for FMD: Data from ARCADIA-POL
Andrzej Januszewicz, MD

3:00 - 3:15 pm | Coffee and Networking Break

Session 3: Basic and Translational Science, Genetics | Santhi Ganesh, MD and Jason Kovacic, MD, PhD Moderators

Each talk - 12 minutes with 3 minutes for discussion unless noted.

3:15 - 3:30 pm
Introducing the ALIGN-FMD Network
Santhi Ganesh, MD and Jason Kovacic, MD, PhD

3:30 - 3:45 pm
Human Genetics of FMD & Arterial Dissection: Genetic Architecture and Discovery
Santhi Ganesh, MD

3:45 - 4:00 pm
FMD and SCAD GWAS, Functional Modeling of Genetic Risk: iPSCs and Related Approaches
Nabila Bouatia-Naji, PhD

4:00 - 4:15 pm
Network Biology of FMD and SCAD: Network Approaches and Mechanisms, PHACTR1 Pathways, and UBR4 Biology
Jason Kovacic, MD, PhD

4:15 - 4:30 pm
Clinical Genetics of Overlapping Arteriopathies: Who to Test for Monogenic Conditions and How
Anna Mitchell, MD, PhD

4:30 - 4:45 pm
Platelets Provide Insight Into Disease Etiology and Stroke in FMD
Scott Cameron, MD

4:45 - 5:00 pm |  Additional Discussion

5:00 pm | General Sessions Adjourn

Friday, July 24th

9:00 - 9:45 am | Registration, Breakfast, Networking

10:00 - 10:05 am | Welcome to Day 2
Heather Gornik, MD

Session 4: Clinical Considerations II – Cerebrovascular | Jeffrey Olin, DO, Moderator

Each talk - 12 minutes with 3 minutes for discussion unless noted.

10:05 - 10:10 am
Brief Case Presentation
Elizabeth Akpan-Smart, MD

10:10 - 10:15 am
My Top 5 Pearls of Wisdom for Assessing Carotid FMD in the Vascular Lab
Jeffrey Olin, DO

10:15 - 10:25 am
Evolving Understanding of Cerebrovascular FMD: How Have Registry Data Informed Us? (7 + 3 min discussion)
Heather Gornik, MD

10:25 - 10:40 am
Cervical Artery Dissection: Emerging Data From Global Studies
Andrew Southerland, MD

10:40 - 10:55 am
Modern Management of Cerebral Aneurysm for Patients with FMD
Yin Hu, MD

10:55 - 11:10 am
Endovascular Therapies for Acute Stroke and Cervical Dissection/Pseudoaneurysm
M. Shazam Hussain, MD

11:10 - 11:25 am
Advancements in Headache Management Options for Patients with Migraine
Deborah Reed, MD

11:25 - 11:40 am
Carotid Web/Bulb Diaphragm: Emerging Evidence on Risk and Management
Kelsey Rose Duncan, MD

Rapid Research Recap Presentations 
Each talk - 7 minutes with + 3 minutes discussion.

11:40 - 11:50 am
Cervical Artery Dissection: Vascular Abnormalities Below the Neck and Recurrent Events
Daniella Kadian-Dodov, MD

11:50 am - 12:00 pm
Impact of Medical Therapies on FMD Outcomes
Thoai Vu, MD

12:00 - 1:00 pm | Lunch

Session 5: Now for Something Different: FMD in Other Locations | Heather Gornik, MD, Moderator

Each talk - 7 minutes with + 3 minutes discussion unless noted.

1:00 - 1:05 pm
Brief Case Presentation
Aparna Narendrula, MD

1:05 - 1:15 pm
FMD of the Upper and Lower Extremities: Literature Review and Clinical Experience
Natalia Fendrikova-Mahlay, MD

1:15 - 1:25 pm
Visceral Artery Dissections in FMD: Data From ARCADIA-POL
Magdalena Januszewicz, MD

1:25 - 1:35 pm
Visceral Artery Dissections: Data from France
Laurence Amar, MD

1:35 - 1:45 pm
Segmental Arterial Mediolysis (SAM): Distinguishing Features of an Important Differential Diagnosis
Aditya Sharma, MBBS

1:45 - 1:55 pm
Microvascular (Retinal) Findings in Patients with FMD
Pulkit Chaudhury, MD

1:55 - 2:05 pm
Does FMD Involve the Aorta?
Heather Gornik, MD

2:05 - 2:15 pm | Additional Discussion

Session 6: Patient Perspectives, Quality of Life Advocacy | Pamela Mace, RN, Moderator

Each talk - 7 minutes with + 3 minutes discussion.

2:15 - 2:25 pm
From FMD-Be to FMD-EU: Journey of International Patient Partnerships
Cathlin Jamison

2:25 - 2:35 pm
Mental Health Impact of FMD: Data from University Hospitals
Dina Dejanovic, MPH

2:35 - 2:45 pm
How Does Experience with Other CV Diseases Inform the Approach to Anxiety in FMD
Samuel Sears, PhD

2:45 - 2:55 pm
FMD and Pregnancy: Literature Review and UK Experience
Constantina Chrysochou, MBChB, PhD

2:55 - 3:15 pm
Panel: Perspectives on the FMD Patient Experience
Erin Bartman
Cathlin Jamison
Valerie Toly, PhD, RN
Tina Vanderpol
Wanda Ellis

3:15 - 3:30 pm | Coffee and Networking Break

Session 7: Spontaneous Coronary Artery Dissection (SCAD)| Rebecca Young, MSN-ED, Moderator

Each talk - 12 minutes with 3 minutes for discussion unless noted.

3:30 - 3:35 pm
Brief Case Presentation
Agnes Koczo, MD

3:35 - 3:50 pm
What We Have Learned from the Canadian SCAD Cohort Including Impact of FMD
Jacqueline Saw, MD

3:50 - 4:05 pm
Key Findings from the iSCAD Registry: A Case Study in Patients as Partners
Esther SH Kim, MD, MPH

Rapid Presentations
Each talk - 7 minutes with + 3 minutes discussion.

4:05 - 4:15 pm
Impact of Cardiac Rehabilitation for Patients with SCAD
Bryan Wells, MD

4:15 - 4:25 pm
Evolving Concepts of Exercise and CV Risk: How Might This Apply to SCAD and FMD
Bradley Lander, MD

4:25 - 4:35 pm | Additional Discussion

Session 8:  Report Out of Think Tank | Heather Gornik, MD, Moderator

4:35 - 4:45 pm
Research Priorities
TBD

4:45 - 4:55 pm
Refining the FMD Phenotype
TBD

4:55 - 5:05 pm
Patient Priorities
TBD

5:05 - 5:15 pm
Next Steps and Farewell
Heather Gornik, MD and Planning Committee

5:15 pm | Meeting Adjourns

Program Participants

University Hospitals Participants
Elizabeth Akpan-Smart, MD
Internal Medicine Resident
University Hospitals and Case Western Reserve University School of Medicine

Kelsey Rose Duncan, MD
University Hospitals Neurological Institute
Cleveland, Ohio

Heather Gornik, MD, Program Chair
University Hospitals Harrington Heart & Vascular Institute
Cleveland, Ohio

Tarek Hammad, MD
University Hospitals Harrington Heart & Vascular Institute
Cleveland, Ohio

Yin Hu, MD
University Hospitals Neurological Institute
Cleveland, Ohio

Bradley Lander, MD
University Hospitals Harrington Heart & Vascular Institute
Cleveland, Ohio

Anna Mitchell, MD, PhD
Department of Genetics, University Hospitals
Cleveland, Ohio

Olivia Noall, MD
Cardiovascular Medicine Fellow
University Hospitals and Case Western Reserve University School of Medicine

W. Michael Park, MD
University Hospitals Harrington Heart & Vascular Institute
Cleveland, Ohio

Deborah Reed, MD
University Hospitals Neurological Institute
Cleveland, Ohio

Daniel Simon, MD
Interim President, University Hospitals Harrington Heart & Vascular Institute
Cleveland, Ohio

Rebecca Young, MSN-ED
University Hospitals Harrington Heart & Vascular Institute
Cleveland, Ohio

United States Participants
Aaron Aday, MD
Vanderbilt University
Nashville, Tennessee

Erin Bartman
Patient Advocate, Ohio

Scott Cameron, MD
Cleveland Clinic 
Cleveland, Ohio

Pulkit Chaudhury, MD
Cleveland Clinic
Cleveland, Ohio

Matthew Corriere, MD 
Ohio State University
Columbus, Ohio

Dina Dejanovic, MPH
East Carolina University
Greenville, North Carolina

Wanda Ellis
Patient Advocate, Ohio

James Froehlich, MD 
University of Michigan
Michigan Clinical Outcomes Research & Reporting Program (MCORRP)
Ann Arbor, Michigan

Santhi Ganesh, MD
University of Michigan
Ann Arbor, Michigan

M. Shazam Hussain, MD
Cleveland Clinic
Cleveland, Ohio

Daniella Kadian-Dodov, MD
Mount Sinai Fuster Heart
Icahn School of Medicine at Mount Sinai
New York, New York 

Esther SH Kim, MD, MPH
Atrium Health Sanger Heart & Vascular Institute
Charlotte, North Carolina

Agnes Koczo, MD
University of Pittsburgh Medical Center
Pittsburgh, Pennsylvania

Rachel Krallman
University of Michigan MCORRP
Ann Arbor, Michigan

Natalia Fendrikova-Mahlay, MD
Cleveland Clinic
Cleveland, Ohio

Pamela Mace, RN
FMD Society of America (FMDSA)
Rocky River, Ohio

Rosemary Miklavcic, RN
Patient Advocate, Kentucky

Jeffrey Olin, DO
Mount Sinai Fuster Heart
Icahn School of Medicine at Mount Sinai
New York, New York

Samuel Sears, PhD
East Carolina University
Greenville, North Carolina

Aditya Sharma, MBBS
Atrium Health Sanger Heart & Vascular Institute
Charlotte, North Carolina

Mehdi Shishehbor, DO, MPH, PhD
University Medical Partners/Stanford Medicine
Palo Alto, California

Andrew Southerland, MD
University of Virginia
Charlottesville, Virginia

Valerie Toly, PhD, RN
Patient Advocate, Ohio

Bryan Wells, MD
Emory University
Atlanta, Georgia 

International Participants
Laurence Amar, MD
Universite Paris Cite
Paris, France

Nabila Bouatia-Naji, PhD
Paris Cardiovascular Research Centre
Paris, France

Constantina Chrysochou, MBChB, PhD
Salford Royal Hospital
Manchester, United Kingdon

Cathlin Jamison
International Patient Advocate 
FMD-EU
Brussels, Belgium

Andrzej Januszewicz, MD
Institute of Cardiology, Warsaw
Warsaw, Poland

Magdalena Januszewicz, MD
Institute of Cardiology, Warsaw
Warsaw, Poland

Jason Kovacic, MD, PhD
Victor Chang Institute
Darlinghurst, Australia

Alexandre Persu, MD, PhD
Cliniques Universitaires Saint-Luc (UCL)
Brussels, Belgium

Jaqueline Saw, MD
Vancouver General Hospital
Vancouver, Canada

Maria Stoenoiu, MD, PhD
Cliniques Universitaires Saint-Luc (UCL)
Brussels, Belgium

Tina Vanderpol, Retired Nurse
International Patient Advocate 
Vancouver, Canada

John B. Lally Family Foundation Early Career Travel Grant Awardees
Sally El Sammak, MD
Vascular Medicine Fellow
Emory University
Atlanta, Georga

Dayna Mazza, MD
Pediatric Nephrologist
Children’s Hospital of Philadelphia
Philadelphia, Pennsylvania

Szymon Moryn, MD
Resident Physician, Hypertension Clinic
National Institute of Cardiology 
Warsaw, Poland

Aparna Narendrula, MD
Vascular Medicine Fellow
Icahn School of Medicine at Mount Sinai
New York, New York 

Lena Tran, MD
Cardiology/Vascular Medicine Attending
University of Texas Southwestern
Dallas, Texas

Thoai Vu, MD
Internal Medicine Resident 
Johns Hopkins University
Baltimore, Maryland

Planning Committee
Heather Gornik, MD, Program Chair
University Hospitals Harrington Heart & Vascular Institute
Cleveland, Ohio

Santhi Ganesh, MD
University of Michigan
Ann Arbor, Michigan

Esther SH Kim, MD, MPH
Atrium Health Sanger Heart & Vascular Institute
Charlotte, North Carolina

Jason Kovacic, MD, PhD
Victor Chang Institute
Darlinghurst, Australia

Pamela Mace, RN
FMD Society of America (FMDSA)
Rocky River, Ohio

Jeffrey Olin, DO
Icahn School of Medicine at Mount Sinai
New York, New York

Rebecca Young, MSN-ED
University Hospitals Harrington Heart & Vascular Institute
Cleveland, Ohio

Program Coordinators
Kourtney Daugherty
University Hospitals Harrington Heart & Vascular Institute
Cleveland, Ohio

Harpreet Kaur, MS
University Hospitals Harrington Heart & Vascular Institute
Cleveland, Ohio