Clinical Research Community Advisory Board

The Clinical Research Community Advisory Board (CAB) is a group of engaged, diverse community members who want to learn more about clinical research and influence the processes of clinical trials in a way that ensures inclusivity and a positive patient experience. Each Clinical Research CAB member’s unique background—personally and professionally—contributes to rich discussion about everything from ethics in clinical trials to the best ways to share results with networks for the greatest community impact.

Purpose

Our Clinical Research Community Advisory Board exists so that our principal investigators, study teams, and patient study volunteers (current and future) have a space to:

  • Learn from diverse community stakeholders, across sectors and types, about the current state of the perception of clinical research from community members;
  • Develop partnerships between institutions, agencies, and residents that will create networks built on trust to dispel myths about clinical research—notably in racially and ethnically diverse communities;
  • Understand how clinical research impacts community health by bringing social and environmental health determinants into discussions (i.e., locally, regionally, and nationally) about how to make clinical research accessible to everyone; and
  • Engage in responsive reflection, with a commitment to represent interests broader than those who serve on the Clinical Research Community Advisory Board.

Goals

Our Clinical Research Community Advisory Board goals are to:

  • Promote inclusion of diverse constituents in clinical research activities at UH designed to enhance understanding of human research by participants, prospective participants, and their communities;
  • Foster an environment that involves community members in the design and implementation of research; and
  • Empower community members with data from clinical research that they will disseminate to their networks, furthering the purpose of research, raising awareness about the importance of research, and building bridges between science, caregivers, and patients.

Sample Assignments

You do not have to be a physician-scientist to provide feedback on research processes and procedures that directly impact patient experience. We all have a valuable healthcare experience that we can build off and translate to meaningful insights that may direct how clinical research is accessed by, completed, and communicated to our community. Some of the assignments our Clinical Research Community Advisory Board members will be asked to provide feedback on are:

  • Determining whether we should perform a study;
  • Providing feedback on effective ways to recruit diverse or special populations for studies;
  • Advising on ways to raise clinical research awareness in “x” community; and
  • Developing framework for novel programs and resource need identification.

Representation

We cannot improve our research processes without representation from a broad cross-section of community members. These individuals will use their perspective, colored by their experiences, to speak or act on behalf of those who may or may not be in the room or at the table, but whose lives will be impacted, directly or indirectly, by the clinical research work we do and support. Some of our board members are:

  • Community residents
  • Clinicians
  • Principal investigators
  • Local government officials
  • Public health officials
  • Business owners or representatives
  • Faith-based institution leaders
  • Community service providers
  • Housing agencies
  • Criminal justice representatives
  • Community development corporations
  • Insurers

Inclusion

Inclusion is the practice or policy of providing equal access to opportunities and resources for people who might otherwise be excluded or marginalized. Our Clinical Research Community Advisory Board will be intentionally inclusive so that our outcomes and impact have the depth and breadth required to advance the science of healthcare for all. These characteristics and traits are some of the qualities we are seeking in members of the Clinical Research Community Advisory Board:

  • Racial minority (i.e., refers to a person's physical characteristics, such as bone structure and skin, hair or eye color; e.g., African-American or Black, Caucasian or White, Asian, Native American, etc.)
  • Ethnic minority (i.e., refers to cultural factors, including nationality, regional culture, ancestry, and language; e.g., of German or Spanish ancestry regardless of race)
  • Differently abled (e.g., challenges with vision, movement, thinking, learning, communication, mental health, social relationships)
  • Age (e.g., children (0-17), young adults (18-30), senior citizens (60+))
  • Religion (e.g., Amish, Jehovah Witness, Catholic, Christian, nondenominational, Muslim, etc.)
  • LGBTQIA (i.e., lesbian, gay, bisexual, transgender, queer or questioning, intersex, and asexual or allied)
  • Gender (i.e., either of the two sexes (male and female), especially when considered with reference to social and cultural differences rather than biological differences)
  • Military veteran (e.g., current or past member of any branch of the military, active or reserve)
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