Caring for Bladder Exstrophy in Adolescence and Young Adulthood - Navigating Health, Independence and Lifelong Well Being

Bladder exstrophy is a condition that lasts a lifetime. During the teen and young adult years, new health, emotional, and social challenges can arise. As care moves into adulthood, the focus often shifts from past surgeries and bladder control to independence, body confidence, relationships, future fertility, and long-term bladder and kidney health.

Join experts to learn about age-appropriate care during this important stage of life and how a smooth transition to adult care can support confidence, independence, and overall quality of life.

In this session, attendees will learn about:

• Transitioning from pediatric to adult care
• Ongoing bladder and kidney health
• Emotional wellbeing and self-confidence
• Sexual and reproductive health
• Life goals, such as college, work and independent living

More Information

• Learn more about UH Rainbow Bladder Exstrophy Program.
• Meet the UH Rainbow Bladder Exstrophy team.