PCD Registry

Study Purpose

Primary ciliary dyskinesia (PCD) is a disease that results in chronic cough and recurrent respiratory and sinus infections, among other symptoms. PCD is caused by dysfunction of cilia, which are tiny hair-like structures that line the sinus and respiratory tract, as well as other parts of the body. Our purpose for this research study is to learn more about PCD through the creation of a secure electronic clinical registry. Through this registry, we will be able to follow people living with PCD over time to learn more about how PCD affects people’s health and the treatment people take.

Who Can Participate

Ages: 0-90 years old **STUDY IS ONLY RECRUITING ACTIVE PCD PATIENTS AT UNVIERSITY HOSPITALS**