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GMS-PH-401

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A Real-world Patient Registry in Group 3 Pulmonary Hypertension Associated With Interstitial Lung Disease (PH-ILD) – The DeciPHer-ILD Registry

  • Sex: Any
  • Age: Adult (18 - 64)
  • Accepting Healthy People: No
  • Type: Registry
  • Trial Phase: NA
  • Conditions Being Studied: Pulmonary Hypertension

Study Purpose

The purpose of this study is to collect data on the participant characteristics, treatment approaches, and clinical results of participants who have PH-ILD. The study will also look at how the disease affects your daily life. This is a prospective, non-interventional, multicenter, registry of patients with PH-ILD. Patients will be enrolled into 1 of 3 cohorts. Cohort 1: patients who are not receiving inhaled treprostinil at time of study enrollment. Cohort 2: patients who are newly initiated on Tyvaso/Tyvaso DPI. Cohort 3: patients who have been receiving Tyvaso/Tyvaso DPI for >60 days.

Who Can Participate

Age: 18 years and older

Principal Investigator
Maroun Matta MD
Department/Division
Medicine (Pulmonary and Critical Care Medicine)

Locations

UH Cleveland Medical Center
11100 Euclid Ave
Cleveland OH, 44106

  • UH IRB: STUDY20250415
  • StudyID: 2025-01671
  • ClinicalTrials.gov: N/A
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