Cystic Fibrosis (CF)

Smooth Transitions from Pediatric to Adult Cystic Fibrosis Care

The LeRoy W. Matthews Cystic Fibrosis Care Center at University Hospitals has been one of the nation’s leading programs for cystic fibrosis since 1957.

We begin caring for most patients with a cystic fibrosis diagnosis as babies and children. But what happens as pediatric patients grow up?

We understand how difficult it is for young patients to give up a pediatric care team they’ve had in place for 18 or 19 years. But, at one of the first cystic fibrosis programs of its kind, pulmonary specialists at University Hospitals ensure stress-free graduation from pediatric care into the adult program.

As our patients age, we transition care in a carefully orchestrated way. In fact, 30 percent of our adult population is over 35 years old. This gives us hands-on expertise in the specialized care of cystic fibrosis in adults - which is important since the condition often becomes more complicated with age.

Outpatient and Inpatient Care for Cystic Fibrosis

University Hospitals is committed to following patients with cystic fibrosis closely and providing expert care for both urgent issues and long-term disease management. If any patient’s condition worsens, we admit them to one of our hospitals for specialized care to stabilize and treat specific issues.

Our nursing staff, respiratory therapists and dietitians are specially trained in the unique needs of cystic fibrosis patients - and can offer any services needed, including pulmonary rehabilitation.

The benefits of pulmonary rehabilitation include:

  • Relief from breathlessness, labored breathing or fatigue
  • Reduced anxiety associated with cystic fibrosis and breathing difficulties
  • Improved respiratory hygiene to reduce the risk of infection
  • Better quality of life

If a patient’s lung function becomes significantly diminished, dropping below 30 percent, our team can also help patients and their families explore the possibility of a lung transplant.

Specialized Services for Cystic Fibrosis

If you or someone you love has been diagnosed with cystic fibrosis, our pulmonary team at University Hospitals can provide the expert care needed. We have an entire team of pulmonologists available, at a range of convenient locations available.