Learn About Newborn Sweat Test Screenings for Cystic Fibrosis
If your baby’s newborn screen comes back positive for cystic fibrosis, your pediatrician may refer you to University Hospitals Rainbow Babies & Children’s Hospital LeRoy W. Matthews Cystic Fibrosis Center for a confirmatory test called a sweat test. Learn more about what this test involves and what you can expect during your baby’s testing appointment.
How to Make an Appointment for Testing
To make an appointment, please call 216-844-3936 and inform the receptionist that you would like to schedule a sweat test for cystic fibrosis newborn screening. Sweat test appointments are scheduled on Fridays. The test should be scheduled two to four weeks after the birth of your baby for the most accurate result.
How much time do I need for the appointment?
The actual sweat test will take approximately 60 minutes. Your visit at UH Rainbow Babies & Children’s Hospital, including meeting with a genetic counselor, could take several hours in total. When you schedule your appointment, you will be told how long the appointment will take.
Getting to UH Rainbow Babies & Children’s Hospital
UH Rainbow Babies & Children’s Hospital is located at:
11100 Euclid Avenue
Cleveland, Ohio 44106
UH Rainbow Babies & Children’s Hospital is part of University Hospitals Cleveland Medical Center, located in University Circle in Cleveland. Parking is available in the garage located on UH Drive.
Getting to the Center for Human Genetics
Your testing will take place at the Center for Human Genetics, located on the first floor of the Lakeside Building, Suite 1500, on the campus of UH Cleveland Medical Center. For more information on this location, stop at any receptionist desk for assistance.
After checking in at the front desk of the Center for Human Genetics, you will meet with a genetic counselor who is familiar with cystic fibrosis. Your baby will then have a sweat test to determine whether he or she has cystic fibrosis. About the Sweat Test
Small areas of your baby’s arms or legs will be stimulated to sweat. The sweat will be collected on a piece of gauze and sent to the laboratory for analysis. The testing will take approximately one hour to perform.
Sweat Test Results and Follow-Up
You can return to the Center for Human Genetics in the early afternoon to receive the results of your baby’s test, or you can return home and receive the results from the genetic counselor by phone. If your baby does not have cystic fibrosis (CF), you will meet again with the genetic counselor. Babies who do not have CF but who tested positive on the first newborn screening are often carriers of the CF gene. This means that although they are not diagnosed with CF, they might pass on the disease to their future children. It also means that either you or the other parent of the baby is definitely a carrier of CF. It is important to know this since any other children you have in the future may be born with CF, and children you already have may also be carriers.
If your baby has CF, you can meet with a member of UH Rainbow Babies & Children’s Hospital CF team for an introduction to the LeRoy W. Matthews Cystic Fibrosis Center and our services. At our center, we have a dedicated team of staff members to care for your child with the very newest and best treatments for CF.
If you have additional questions or concerns about the sweat test for infants, please contact us at 216-844-3936.
The LeRoy W. Matthews Cystic Fibrosis Center at University Hospitals Rainbow Babies & Children’s Hospital
The LeRoy W. Matthews Cystic Fibrosis Center at UH Rainbow Babies & Children’s Hospital is world-renowned for its care of children and adults with CF and is fully accredited with the highest possible rating by the Cystic Fibrosis Foundation. The model of care – a multidisciplinary team approach that includes pediatric pulmonary specialists, nurses, respiratory therapists, nutritionists, social workers, child life therapists and other specialists – was first developed by Dr. LeRoy Matthews in the 1950s and adopted nationwide by cystic fibrosis care centers.
Physician-scientists at UH Rainbow Babies & Children’s Hospital and Case Western Reserve University School of Medicine are among the world’s most innovative researchers, developing new treatments and leading the search for a cure for CF. The Willard A. Bernbaum Cystic Fibrosis Research Center strives to understand the basic defect of the disease and its consequences, the reasons for the lung infection and inflammation in CF and how to treat it, and methods by which the corrective gene can be introduced into the lung. The fruits of these discoveries come to the patients receiving care at the LeRoy W. Matthews Cystic Fibrosis Center and the KC and Ginny Bryan Pulmonary Diagnostic Center at UH Rainbow Babies & Children’s Hospital through access to novel therapies not available at other hospitals. At UH Rainbow Babies & Children’s Hospital, helping patients live a long life is our goal. Due in part to the leadership and research efforts of UH Rainbow Babies & Children’s Hospital specialists, the life expectancy of patients with cystic fibrosis nationwide is now more than 38 years with the majority of patients at UH Rainbow Babies & Children’s Hospital among the oldest CF patients in the nation.