Helping Childhood and Young Adult Cancer Survivors Live Life to the Fullest
After cancer has been treated and cured, health issues may arise years or even decades after treatment has ended.
Part of University Hospitals Rainbow Babies & Children’s Hospital’s Angie Fowler Adolescent & Young Adult Cancer Institute and UH Seidman Cancer Center, the Center for Survivors of Childhood Cancer specialists fully understand the continuing challenges linked with surviving cancer. Our team is committed to helping children, adolescent and young adult cancer survivors live healthy and full lives, well beyond treatment.
Enhancing Well-Being through Life-Long Care
Health issues such as cardiovascular problems, diabetes, depression and obesity can afflict cancer survivors. Some adolescents and young adults may have trouble finding employment, holding down a job, successfully integrating into society, or sustaining healthy relationships.
Dedicated to enhancing well-being throughout a patient’s life, the Center for Survivors of Childhood Cancer offers:
- Superior clinical care
- Patient advocacy
- Survivorship research
- Continuity of patient records and access to specialists in cancer survivorship
Additionally, we offer the following patient support programs:
- Long-Term Follow-Up Clinic
- School Liaison Program
- Survivor Advocacy Program
- Kids Kicking Cancer Program
Passport for Care Offers Life-Long Access to Services
The Center for Survivors of Childhood Cancer at UH Rainbow Babies & Children’s Hospital was among the first in the U.S. to offer the innovative Passport for Care program to provide life-long access to the following:
- A patient’s electronic medical record of cancer care
- Pediatric hematology and oncology physicians, nurses and other integral members of the care team
- Cancer updates
- Information about the latest treatments
Childhood, teen and young adult cancer survivors have an increased risk of developing medical and emotional problems later in life. UH Rainbow Babies & Children’s Hospital’s Angie Fowler Adolescent & Young Adult Cancer Institute participates in a Passport for Care program that offers support services to ensure an effective and smooth transition into adult care.
Passport for Care includes a medical database for patients to use for readily accessible information. Through this program, patients have access to a personalized electronic record of their cancer care, a database of cancer research, and a national survey on lifestyle issues.
Survivor Advocacy Program
The Survivor Advocacy Program at University Hospitals Rainbow Babies & Children’s Hospital’s Angie Fowler Adolescent & Young Adult Cancer Institute provides a wide range of educational opportunities for parents, families and teachers.
This program is the common thread that weaves all of the childhood cancer programs together. We also advocate on behalf of cancer patients by lobbying for increased funding for childhood cancer research.
Our team at the Survivor Advocacy Program includes experts from a variety of specialties, including:
- Child life
- Oncology nursing
- Pediatric oncology
- Physical therapy
- Social work
- Sports medicine
Team members work collaboratively to identify risk factors and help prevent problems. They also treat patients who have already developed problems associated with being a cancer survivor.
Have Questions? Need to Talk? Ask Amelia.
Do you have questions about our program? Our AYA nurse navigator Amelia Baffa, RN, MSN is here to help. You can contact her directly to learn more about our facilities, support services, resources, meet-ups and more. Email Amelia to find out more about the Angie Fowler Adolescent & Young Adult Cancer Institute.
Want to know more about our AYA nurse navigator, Amelia Baffa? Watch this.