Single Ventricle Monitoring Program

The Single Ventricle Monitoring Program in The Congenital Heart Collaborative at UH Rainbow Babies & Children’s Hospital provides specialized care for high-risk infants born with a single ventricle heart defect. A single ventricle heart means that the child is born with only one pumping chamber instead of two. These infants are monitored very closely during the inter-stage period between their two necessary heart operations. The goal of the program is to prevent life-threatening events, maximize growth and development, and provide families with education and support.

Families with a child in the Single Ventricle Monitoring Program will benefit from:

  • Comprehensive management from the medical and surgical teams handling the most complex cases - from prenatal diagnosis through treatment and lifelong follow-up care.
  • Education to support all individuals involved in the care of infants with single ventricle heart defects.
  • Weekly multidisciplinary clinics that bring together the cardiologist, nurse practitioner, cardiac nursing, nutritionist, social services, feeding therapist and neurodevelopment experts to support your child's overall health between the first and second operations.
  • Reduction in parental stress and anxiety, thanks to structured education and support, as well as improved quality of life for their infant.
  • Recognition of the importance of a dedicated program that focuses on the care of infants between the first and second heart operations. The Single Ventricle Monitoring Program provides care for these children beginning after the newborn operation until they undergo the Glenn operation, whether they are being cared for in the hospital or at home.
  • Our team's participation in the National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC), a national project dedicated to improving survival and quality of life for infants with single ventricle heart defects not only during the inter-stage period but now through the first year of life/

A wide range of cardiac conditions are considered “single ventricle heart defects,” including:

  • Hypoplastic left heart syndrome
  • Unbalanced atrioventricular septal defect
  • Tricuspid atresia
  • Severe Ebstein's anomaly
  • Pulmonary atresia with intact ventricular septum
  • Heterotaxy syndrome
  • Double inlet left ventricle

If you or a family member has any questions regarding our Single Ventricle Monitoring Program, please call 216-844-1234 to speak with a team member.

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