The right call
Posted 3/1/2017 by SARAH PLUMMER, MD
Pediatric Cardiologist, UH Rainbow Babies & Children’s Hospital
Assistant Professor, Case Western Reserve University School of Medicine
and ERIC DEVANEY, MD
Chief, Pediatric Cardiothoracic Surgery, UH Rainbow Babies & Children’s Hospital
Clinical Professor, Case Western Reserve University School of Medicine
Sarah Plummer, MD
Eric Devaney, MD
Dameyonna Willis knew something was wrong with her baby. UH doctors had the answers – and saved the infant's life.
This past July, Dameyonna Willis took her then 4-month-old daughter, Kylee, to a local hospital because she was having trouble breathing. Doctors told the West Cleveland mom that her baby had a viral infection and asthma, and that she would recover. But two weeks later, Kylee was still breathing heavy and fast.
“I thought, ‘Something is not right with my baby,’” Dameyonna says. “She was not getting better.”
Looking for answers
Dameyonna decided to switch her daughter’s care to University Hospitals Rainbow Babies & Children’s Hospital. She called to ask for an appointment with a pediatrician and took Kylee to see Eliane Malek, MD, who was also concerned. Dr. Malek wanted to rule out any problems with Kylee’s heart, so she called cardiology, and within 15 minutes Kylee was being seen by pediatric cardiologist Sarah Plummer, MD. Dr. Plummer, an expert in congenital heart disease (CHD) – the most common type of birth defect in the U.S. – ordered tests and quickly determined that Kylee had a rare and life-threatening congenital heart defect.
In a normal heart, both coronary arteries originate from the aorta. In babies like Kylee, the left coronary artery arises from the pulmonary artery instead of the aorta. This condition, which affects about one in 300,000 babies, prevents the heart from receiving enough blood and oxygen. It can cause heart muscle damage, heart rhythm problems or even death. Kylee needed surgery right away and was admitted to The Congenital Heart Collaborative at UH Rainbow Babies & Children’s that day.
“Kylee’s vital signs were normal and she didn’t look that sick, but she had severe dysfunction of the left ventricle, the heart’s main pumping chamber,” Dr. Plummer says. “It was a priority to ensure that the baby underwent surgery in a reasonable period of time.”
Dr. Plummer says that because of the excellent relationship that pediatricians and subspecialists have at UH Rainbow Babies & Children’s, Kylee was able to receive the highest level of care.
“If the primary care doctors think something is really urgent, they don’t hesitate to call us directly to see if we can expedite a consultation,” she says. “Kylee’s case was an extreme, extraordinary example, but I’d say we get these requests at least once a week. We’ll go out of our way to evaluate patients so we can put the family at ease.”
A bright future
In late August, Eric Devaney, MD, FACS, Chief of Pediatric Cardiothoracic Surgery at UH Rainbow Babies & Children’s, performed a four-hour surgery to correct Kylee’s heart defect. Nine days later, Kylee went home. Her heart function is gradually improving, and the future seems full of possibility.
Kylee, now 1 year old, sees Dr. Plummer every six weeks. She will continue to be regularly monitored by a cardiologist, specializing in CHD, throughout her life.
“She’s doing perfect,” Dameyonna says. “She wiggles around to music and likes clapping along to songs – she has a big personality. You’d never know she was sick. Her father, Kylan, and I are so blessed and happy that I chose to go to UH Rainbow Babies & Children’s for her care. They saved our daughter’s life.”
The Congenital Heart Collaborative
University Hospitals Rainbow Babies & Children’s and Nationwide Children’s hospitals have formed an innovative affiliation – The Congenital Heart Collaborative – for the care of patients with congenital heart disease from fetal life to adulthood. The innovative collaboration provides families with access to one of the most extensive and experienced heart teams – highly skilled in the delivery of quality clinical services, novel therapies and a seamless continuum of care.
Learn how the Congenital Heart Collaborative saved Robir’s life at Rainbow.org/Heart.